Jolynn Green’s ALK Lung Cancer Story

At 59 years old, I was fit and healthy. My lung cancer was discovered by accident—I was being tested for something completely unrelated when a CT scan revealed a small nodule in my right lung. That moment changed everything.

Most people diagnosed with lung cancer don’t find out until it’s Stage 4, when symptoms finally appear. In my case, the nodule was monitored, and a year later, I underwent surgery to remove it.

After testing, I was diagnosed with non-small cell lung carcinoma (NSCLC) and ALK+ lung cancer, a rare form that affects only 2% of lung cancer patients. I went from being told I was cancer-free to learning I had an incurable but manageable disease. The shock was overwhelming.

Living on Vancouver Island, I struggled to find clear answers about what this diagnosis meant for my future. Even in British Columbia, I found little guidance. My family and I reached out to a firm in Ontario, which connected us with an ALK+ specialist in the U.S. This expert helped us understand what to expect and how to advocate for the best possible care.

Now, a year post-surgery, I take life one day at a time. I undergo tests every six months and continue to educate myself about my disease. The uncertainty is difficult, but I have found strength through community. Being part of ALK+ USA and ALK+ Canada has been a game-changer. Their Facebook groups, YouTube channels, and websites provide crucial support and knowledge from people who truly understand this disease.

Compared to many others, my journey has been easier so far. But the unknown—when, where, and how my cancer will progress—can be overwhelming. 

To anyone facing a similar diagnosis:
Don’t give up. Seek knowledge. Advocate for yourself.
And surround yourself with people who lift you up.